Wow has life ever gotten busy. With appointments, blood work, waiting for blood work results to find out if he has more appointments... Life has become a "waiting game".
Right now I'm sick. I'm supposed to be in bed feeling better but I've got too much to do to allow myself just to rest. The end of the month is almost upon us and I'm starting to feel anxious.
Brian's boss said he had a bit of work for him. Yes, I know he got laid off - but his boss said Brian could return to work VERY part time just to help him meet deadlines. So Brian was supposed to do a bit of work for him starting Monday. But Sunday night we got a phone-call informing us that his boss has now ended up in the hospital with his own health issues! So, no work. Which is a good thing - I don't think Brian was quite healthy enough to return to work.
Today we've gotten quite a few phone-calls regarding Brian's health issues. He had his blood work done Monday and it revealed some problems arising. His kidney function and platelet levels remain the same. But his hemoglobin has taken a nosedive and potassium levels are dangerously high. Oh and his cholesterol went really high too. Some of these issues are probably side-effects of the medications he's on, but now he's got a whole new set of symptoms that need treatment. So a shipment is arriving at our house in the next day or two of these treatments (one of which involves Brian giving himself needles!! A nurse will come and teach us what to do) And we're returning to VGH on Thursday to check in with the hematology team there, for the first time since his last PLEX treatment.
Crazy. This "new normal". I want my "old normal" back!
Pray:
- The kids, as I said, have been handling this all quite well. But Mercy is starting to have "Daddy separation anxiety" any time her Daddy has to go anywhere. I know this is a direct result of him being in the hospital. She doesn't talk about how things negatively affect her, but she starts to act out and get really insecure. She needs peace...
- That Brian's hemoglobin goes up, that his potassium level comes down, that the platelets will remain stable, and that the kidneys start functioning better again. And that the edema in his feet starts to go down (permanently, please!). That his blood pressure goes down to 120 or under without needing further medication, and that his cholesterol is controlled. Oh and that I learn how to cook foods that treat all of these issues naturally (it's a science and I'm thinking I need to take a class to learn!!)
- That I can remain healthy and... I guess... sane (?) during all of this! I need to keep my head on straight and it's hard some days. I can't afford to be sick, sad, worried, stressed, tired, etc. and right now I'm all of those things.
I hope you feel better soon Korinne! Try to take some time to just rest - you need it! I will be praying for wisdom, especially about moving/not moving. How does Brian feel about it? Do you know of a place that would be a cheaper rent? I totally know what you mean about needing consistency though, and not needing the headache of moving right now! So many big decisions for you guys...
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