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And discouraged. So having a hard time figuring out how to make a post. Point form works best...

- Brian is home. I'm tentatively happy about that, seeing as he's not doing much better than he was in the hospital. His feet are HUGE. On Wednesday we had an appointment and the blood work showed that his platelets jumped to 220 - which is great! But his kidney function is down. I think the doctors are confused by that (platelets are fine, kidneys should be even better now...?)

- We also found out that Brian's boss has decided to lay him off. And we found out today that it's not a permanent layoff, but it's just until Brian gets back on his feet again. It works better this way for his boss, too, so it's a done deal. And that means we have no medical coverage whatsoever. I will NOT be taking the kids to see the dentist this summer, as I'd planned to. This also means whatever medication Brian needs to take to get better is not covered. Yikes...


- Tomorrow we go back into VGH. AGAIN. I'm so tired of driving. I want a day off. But Brian will be receiving another PLEX treatment and I'll just sit around and wait for him. It'll take most of the day. Then we find out what the "new plan" is. Pull the central line? Probably. Make more appointments for next week? Definitely. Possibly set a surgery date for a permanent line to be put in? A possibility. This Atypical HUS thing is a nasty disease to have. It doesn't go away. It pops back up when you least expect it to, and turns your life upside down again. The chance of recurrence is VERY high, especially in the next few months. Meaning the platelet issue will revisit us. The kidney issue looks like it's going to stick around for awhile, possibly being a permanent issue. I've been doing a lot of reading on aHUS and it scares me, and makes me wonder what the future holds for my family. I should probably stop reading.

Thanks for continuing to pray and think good thoughts. Trust me, I am SO grateful most of the time but tonight I just feel burdened.