Saturday, July 31, 2010

Getting Away From it all

I went with my parents to visit Brian yesterday. My Mom had an appointment just across the street, so they invited me to drive in with them. We got there and phoned Brian, who was still getting his Plasma treatment. It ran late and we ended up being able to visit him for only 10 minutes in the end, but it was nice to get a quick update anyway.

They are still not entirely sure on the TTP diagnosis. Brian's case is SO rare and so different from anything they've seen that they still aren't quite sure. So there's no guarantee it'll respond to the plasma treatments the same way most TTP cases would. The doctors are still researching the case of Brian's cousin (in TO) who also has TTP to see if there's a familial connection to this disorder.

On Monday (possibly Tuesday) they will skip a plasma treatment and see if Brian remains stable. But for the rest of this weekend, he will continue getting his treatment every day and go on like normal. He may not see his regular doctor all weekend, so there will be nothing exciting going on until the weekend is over.

So... the kids and I are going away. Possibly for the night. We need a distraction, and we're going to go visit friends at their trailer closeby. We won't have access to our phone, or internet, and I think the break will be good.

Mercy had a heart-wrenching breakdown yesterday. I have never seen such heaving sobs from my five year old. I didn't know what to do, how to comfort her. She was begging to see her Daddy. She was begging me to tell him to come home. She had just gotten in trouble for torturing Koby and screaming at him. I have never seen this behavior from her, and I know it's because of what's going on. I try to protect them and distract them from all of this but I just can't. She's too smart. With wracking sobs she asked me to phone her Daddy, so I got the two of them on the phone to have a big talk. She felt better, somewhat, after that. But the crying continued well into the night. This morning she has a puffy, red face. My poor girl...

So a distraction today will be a very good thing.

How you can continue to pray:
- for Mercy, that she feels peace.
- Wisdom for me regarding whether or not bringing my kids to see Brian in the hospital is a good idea. Their Daddy does not look good, and I don't want it to scare them. At the same time I know they need to see him.
- God's continued provision. Huge praise that our rent is taken care of! And yesterday I was worrying about small things I needed, like diapers, milk and eggs, and cried out to God asking for his help (I have such a hard time asking for help!) While Mercy was melting down there was a knock at the door and two very sweet people were dropping off a card with money inside. Enough to get the few necessary items I need! I have to remember that God is looking out for us and just trust. Pray for me in that area...
- Wisdom for the doctors. They need to figure out what this really is!
- That Brian's platelet levels stay stable when he misses his plasma treatment on Monday/Tuesday.

Praises, while I'm at it:
- Brian's kidneys are now functioning completely normal. There is still a bit of damage, but nothing to be worried about.
- Brian's blood pressure is officially MANAGED.

2 comments:

  1. Poor Mercy. :( She seems like such a sensitive girl. Will be praying more

    ReplyDelete
  2. I'm so glad you're able to go spend a day at the trailer with the Kaysers. You need a break! And so glad to hear that the kidneys and BP are doing well! I will continue to pray for your family, especially for Mercy today.

    ReplyDelete