Monday, August 12, 2013

Today we met with our local MLA to ask him for his support. He got SO fired up about the subject when we told him our story and the meeting went much longer than we'd anticipated! It was so encouraging. I walked away with a few more ideas about how we can reach the public with our message and better communicate the value of funding for Soliris for each and every aHUS patient. I have so much more work to do since meeting with him but I'm excited to do it for all the patients I met at the conference, and for all the patients I know are out there struggling!

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