A Long Time Coming

Brian is still on Soliris and he's doing better and better. Much fewer headaches, and the nausea is almost completely diminished. We went to the inaugural Atypical HUS conference in Toronto recently and learned a bunch of new information about the drug and about the disease. It was amazing. It also made me realize how well off Brian is compared to most patients. He's lucky to be given Soliris, and it was nice to have the reminder.

That's all I can say for now!