Monday, September 19, 2011
Anxious
I could go on and on and on about all the things spinning around in my head, but do any of you really want to read it? And could my fingers even keep up?! Nope, probably not... Brian just came back from his PLEX/Soliris treatment. The doctors decided to do a PLEX even though his numbers were still stable. And they are thinking it might be his LAST PLEX!! Amazing. We'll see what happens when he goes back to the hospital in two weeks. We're hoping the numbers stay stable.
Well, I'm going to go sip a cup of tea and see if I can stop my brain from going into overload. I am physically exhausted from all that's going on in my head. Sitting on the couch and watching some TV sounds like a really good plan...
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Thank you for sharing. Although we often don't know what to say to encourage you or commiserate with you, I'm thankful you have the courage to share.
ReplyDeleteHow long can Brian be on this fancy new drug? Will it cure it or just manage the symptoms?
Brian will be on Soliris for life - it's not a cure but it's managing such a HUGE variety of symptoms it's almost ridiculous! And, instead of doing PLEX every single week, they can do Soliris at least every second week, if not even longer. The treatment takes only 35 minutes, compared to the 4 hour PLEX. So... good all around!
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