Welcome

Welcome to our blog! This blog is about our journey through Brian's Atypical Hemolytic Uremic Syndrome diagnosis and our plea for public funding for his only medical source of hope, a drug called Soliris. A year ago he started on Soliris on a compassionate basis by the drug company, Alexion. We're so thankful to them for changing the course of our lives. What once was a dark, bleak future is now one filled with the hope and promise any young family could wish for. Thank you for your interest in our lives!